tag:blogger.com,1999:blog-1010660469826757043.post8273539399536185124..comments2023-04-24T08:59:11.722-07:00Comments on My Son's Wings: Just to clear some things up/Max's lifeBrooke Slusserhttp://www.blogger.com/profile/08823649533020971897noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-1010660469826757043.post-57542216339996028682010-12-19T12:04:28.704-08:002010-12-19T12:04:28.704-08:00Hi Brooke, I'm Christa, mother of Arielle, 21 ...Hi Brooke, I'm Christa, mother of Arielle, 21 months old w/AGS. Joe posted your blog on Facebook, that's how I found it.<br /><br />AGS can vary in very different ways. It's genetic, but that does not necessarily mean that's in your gene too! In 60% of AGS 'cases', neither of the parents carry the gene, but it got spontaneously altered. A chance of 1 in 100.000, our doctors said.<br />So don't be hard on yourself; you did not know, and you could not do anything to prevent it from happening. It was out of your hands.<br /><br />What's in your hands is how you take care of your son. And you're doing a terrific job! You're there for him, you're breastfeeding/pumping! I'm completely w/you on the fact that in a situation in which you can do so little, making milk for your baby feels like doing something worthwhile! It felt the same way for me! <br /><br />I've breastfed Arielle for 18 months, and only stopped because I got pregnant again. I've pumped, i've "creamed" my milk, to make it more nutritious etc. So if you have ANY questions on breastfeeding, pumping etc etc, please ask and I'll be happy to help you where I can!<br /><br />You're a strong woman and a world class mom! Never forget or doubt that! <br /><br />Wishing you all the best in these times and I'll pray for you and your son too... And remember you're not alone in this! <br /><br />Sincerely,<br />Christa Wiersma,<br />The NetherlandsBlue Fairyhttps://www.blogger.com/profile/16009790108849508448noreply@blogger.comtag:blogger.com,1999:blog-1010660469826757043.post-73393226891884650532010-12-19T09:56:19.345-08:002010-12-19T09:56:19.345-08:00Sounds like my journey with my son. My son is now...Sounds like my journey with my son. My son is now 8 years old. His liver is affected (takes actigal/ Ursodiol) and he has branch pulmonary stenosis. His genetic mutation also caused Pierre Robin Sequence and hyper Sticklers Syndrome. <br /><br />You are not alone! I will keep your little Maddox and YOU in my prayers... It's a long road... but so worth it!<br /><br />Hang in there sweetie!Pamelahttps://www.blogger.com/profile/13112021271690763670noreply@blogger.com